Little is known about disease specific knowledge in patients with chronic kidney disease (CKD). We developed and examined the results of a survey to characterize kidney disease knowledge.
Survey about kidney disease knowledge, with questions developed by experts. Setting and Participants: 401 adult patients with CKD (Stages 1–5) attending a nephrology clinic from April to October 2009.
Outcomes & Measurements
We calculated survey reliability using the Kuder-Richardson-20 coefficient, and established construct validity by testing a priori hypotheses of associations between the survey and patient characteristics. We descriptively analyzed survey responses and applied linear regression analyses to evaluate associations with patient characteristics. Health literacy was measured using the Rapid Estimate of Adult Literacy in Medicine.
Participants median age was 58 (25th-75th percentile, 46–68) years, 83% were White, 18% had limited literacy, and 77% had CKD Stages 3–5. The 28 question knowledge survey had good reliability (KR-20=0.72), and mean (SD) knowledge score was 66% (15%). In support of construct validity of our knowledge survey, bivariate analysis shows that scores are associated with age (β, −0.01 per ten years; 95% CI, −0.02–−0.005; p=0.003), formal education (β, 0.09; 95% CI, 0.03–0.15; p=0.004), health literacy (β, 0.06; 95% CI, 0.03–0.10; p=0.001), kidney education class participation (β, 0.05; 95% CI, 0.01–0.09; p=0.009), knowing someone else with CKD (β, 0.05; 95% CI, 0.02–0.08; p=0.001), and awareness of one’s own CKD diagnosis (β, 0.07; 95% CI, 0.04–0.10; p<0.001). Findings were similar in adjusted analyses.
Recruitment from one clinic limits generalizabilty of findings.
For patients with CKD, this kidney disease knowledge survey (KiKS) is reliable and valid, and identifies areas of and risk factors for poor kidney knowledge. Further study is needed to determine the impact of CKD knowledge on self-care behaviors and clinical outcomes.