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1.  Patient-Initiated Discharge Needs of Allogeneic Transplant Patients 
Clinical journal of oncology nursing  2012;16(4):E142-E149.
doi:10.1188/12.CJON.E142-E149
PMCID: PMC3784345  PMID: 22842699
2.  Challenges and Strategies for Recruitment and Retention of Vulnerable Research Participants: Promoting the Benefits of Participation 
Applied Nursing Research  2010;25(2):101-107.
The purpose of this paper is to describe recruitment and retention of vulnerable hematopoetic cell transplant patients participating in a longitudinal intervention study. Utilizing Swanson’s Theory of Caring Model nurse researchers facilitated patients’ visualization of how study participation could enable them to share their experience and further clinical insights.
doi:10.1016/j.apnr.2010.02.003
PMCID: PMC3029498  PMID: 20974092
3.  GOING WITH THE FLOW: QUALITY OF LIFE OUTCOMES OF CANCER SURVIVORS WITH URINARY DIVERSION 
Purpose
The purpose of this descriptive study is to describe health related quality of life (HRQOL) concerns among cancer patients with continent and incontinent urinary diversions (UD).
Subjects and Settings
Study participants were accrued from members of the California United Ostomy Association and two cancer centers in Southern California.
Instruments
The City of Hope HRQOL-Ostomy Questionnaire (COHHRQOL-O) is a modified HRQOL measurement tool based on the original work done over a number of years by Grant and colleagues.
Methods
The COHHRQOL-O was mailed to 2890 individuals. Of the 1600 returns there were 307 responses from patients with UD indicating they had a UD and a diagnosis that clearly indicated cancer.
Results
The majority of respondents were diagnosed with bladder cancer and the average time since surgery was 9.5 years. While most patients reported being sexually active prior to UD less than 27% resumed sexual activity after surgery. Over 75% of patients also reported difficulty in adjusting to their UD with the majority reporting difficulty with urine leakage. Those who were incontinent reported a range of bothersome issues, such as skin problems around the UD, difficulties in managing UD care, fear of recurrence, financial worries, family distress, and uncertainty about the future.
Conclusions
The results of this study add to our understanding of how patients adjust to a UD and what problems and issues can occur, even years after the initial surgery. Mastering UD care is best done under guidance of a WOC nurse and access to WOC nurse is essential when problems occur.
doi:10.1097/WON.0b013e3181c68e8f
PMCID: PMC3530426  PMID: 20075694
4.  Informal Caregivers of Hematopoietic Cell Transplant Patients: A Review and Recommendations for Interventions and Research 
Cancer nursing  2011;34(6):E13-E21.
Background
Informal caregivers (IC) for medically fragile hematopoietic cell transplant (HCT) patients are a vital unrecognized population supporting the transplant patient along the illness continuum. The long transplant recovery period shifts a greater burden of care to the patient’s IC. Assessment of HCT caregiver quality of life and health status is critical to implementation of timely intervention and support.
Methods
A literature search using several search strategies covering 1980 to 2010 identified studies on ICs of hematopoietic cell transplant patients. These studies were summarized within the caregiver concepts of quality of life, role, and resources. Findings of this review were used to create recommended interventions and identify implications for further research.
Results
Although limited, research on ICs of hematopoietic call transplant patients provides beginning evidence for clinical interventions to support this caregiver population. Interventions created focus on Education, Psychosocial Support, and Self Care.
Conclusions
Although limited randomized trials of interventions have been reported, descriptive studies provide evidence for creating intervention content that addresses needs of ICs of hematopoietic cell transplant patients. Testing of these interventions and additional areas of research are identified.
Implications for Practice
Beginning descriptive evidence provides the basis for interventions for ICs of hematopoietic cell transplant patients. These interventions support caregiver quality of life and role implementation depending on individual caregivers’ resources and needs. Further evaluation and clinical research is needed.
doi:10.1097/NCC.0b013e31820a592d
PMCID: PMC3123439  PMID: 21242762
IC; hematopoietic cell transplant; hematologic cancers; quality of life
5.  Creating a Palliative/Educational Session for HCT Patients at Relapse 
doi:10.1188/11.CJON.411-417
PMCID: PMC3246399  PMID: 21810574
6.  Psychological Consequences of Hematopoieitc Stem Cell Transplant 
Seminars in oncology nursing  2009;25(2):139-150.
Objectives
To address the psychological impact of the transplant on quality of life including physical, psychological, social and spiritual for the patient and caregiver and to discuss the nurse’s emotional labor of caring and compassion fatigue for such an intense vulnerable population.
Data Sources
Psychological transplant studies, peer review journals, and textbooks.
Conclusions
The psychological impact after an experience of a transplant can leave an indelible impression on the patient, caregiver and nurse.
Implications for Nursing Practice
Suggestions are made for assessment and management of various potential psychological issues for the three mentioned populations. With these issues being better understood, nurses can actively lessen psychological morbidity.
doi:10.1016/j.soncn.2009.03.008
PMCID: PMC3105969  PMID: 19411017
Hematopoietic stem cell transplantation (HSCT); Psychological; Quality of Life (QOL); Caregiver; Compassion Fatigue
7.  APN Core Competencies: A Framework for Developing and Testing an APN Discharge Intervention 
Clinical nurse specialist CNS  2008;22(5):218-225.
The purpose of this paper is to describe evidenced-based interventions as implemented by Advanced Practice Nurses (APN) conducting intervention research with a vulnerable population of blood and marrow transplant patients. In addition, each of the six core competencies of the APN role identified by Hamric are outlined and applied using a patient case study. These competencies are the following: direct clinical practice, expert coaching and advice, consultation, research skills, clinical and professional leadership, collaboration, and ethical decision-making.1 This article chronicles a typical patient's journey through a post hospital discharge nursing research study involving APNs as “intervention nurses” and discusses the various aspects of the APN core competencies throughout the process.
doi:10.1097/01.NUR.0000325366.15927.2d
PMCID: PMC3097039  PMID: 18753879
Advanced Practice Nurse; Transplant; Intervention research

Results 1-7 (7)