What state do you represent?
1. Are you the Comprehensive Cancer Control (CCC) Plan manager? If no, please specify your position.
1a. How many years have you been the CCC Plan manager?
2. How many years have you worked for the CCC section of your health department?
3. What is your educational background?
High school diploma/GED
Other postgraduate degree (eg, JD, MD) (Please specify):
4. Which of the following sectors were involved in the planning/writing of the CCC plan (check all that apply):
Hospitals/health care providers
Support groups/advocacy organizations
Local public health
4a. Of these groups (academia, hospitals/health care providers, private sector/industry, support groups/advocacy organizations, faith-based groups, local public health, media), who do you perceive as the biggest champion of genetics/genomics integration (please rank from lowest to highest)?
5. When was genetics and/or genomics identified as relevant in public health and cancer prevention and control?
5a. How was genetics/genomics identified as a priority in public health and cancer prevention/control (such as an event or circumstance)?
6. Please identify all of the facilitators that were key to integration of the genetics/genomics components of the CCC plan
Strong partnerships within the state department of health
Strong partnerships with the health care provider community
Strong partnerships with the research community
High priority of genetics/genomics within state public health department
Genetic counselor on staff
Additional funding sources
Provision of continuing education credits for professions
Other (please specify):
6a. What organization or individual was your greatest source of support to implementation of genomics concepts?
7. Please describe the general process used to write the genetic/genomics section(s).
8. Did you experience any barriers to the implementation of specific genetic/genomic components?
8a. What barriers have you encountered?
Lack of a strong partnership with the research/medical community
Lack of support within the department
Lack of sufficient staff/leadership
Lack of sufficient funding
Misperceptions or misinformation about genetics/genomics
Lack of evidence base
Lack of demonstrable outcomes
Other (please specify):
8b. How have you overcome these barriers?
9. To date, have you had the opportunity to implement the genetic/genomic components within your plan?
9a. Have you accomplished your assigned goal(s)/objective(s)?
9b. If yes, what was your greatest accomplishment to date? If possible, please include an explanation of the process outcomes and population impact.
9c. If no, why do you feel you have not accomplished your assigned goal/objective?
10. What is the current priority level of genomics in your state health department?
Somewhat a priority
Somewhat not a priority
Not a priority
10a. How has the priority changed over the last 5 years?
Stayed the same
11. Have you begun the process of drafting a subsequent CCC?
11a. If yes, have the genetics/genomics components changed?
11b. Are there plans to incorporate information on specific genetic cancer syndromes (eg, Hereditary Breast and Ovarian Cancer Syndrome, Lynch syndrome)?
Incorporated into previous plan
11c. Which syndromes are being considered for incorporation in your future plan?
Hereditary Breast and Ovarian Cancer Syndrome (BRCA1/2)
12. What types of partnerships and resources would be helpful in further implementing the genomics components of your state plan?
13. What public health genomics training resources have you utilized?