National surveys have demonstrated that a high proportion of adults both believe most of the health information that is available on the internet4
and make decisions for themselves and others based on that information.4
Other studies have found variability in the reliability and accuracy of websites that contain pediatric health information.7, 9
Furthermore, one study found that half of those who used the internet to search for health information did not verify the source or currency of the information, relying instead on “common sense;” the authors speculate that this is perhaps because of the great deal of trust placed on the reliability of the internet.4
However, it is clear that when parents hear mixed messages about a specific health recommendation, they are more likely to discount that recommendation as unimportant.18
It is therefore disturbing that less than one-half (43.5%) of the websites found in our Google searches for key phrases related to infant sleep safety provided accurate information. Even when websites that were not relevant were excluded, only 60.8% of websites were accurate in the advice provided.
In general, government and organization websites had the highest rates of accurate information (80.1% and 72.5%, respectively). Government websites with either inaccurate or not relevant information generally contained outdated information. There was no specific topic that predominated in the inaccurate category for government websites. Organization websites, on the contrary, were generally consistent in containing updated information about infant sleep safety. The organizations represented in these websites included health awareness, parenting, healthy infant advocacy, and SIDS awareness organizations.
Educational websites inclued those with .edu in the URL, books, scientific/medical institution pages, and peer-reviewed articles; only 52.4% of these websites contained accurate information. Because peer-reviewed articles were assessed for accuracy based on the information available, those that only provided a title and abstract and required a subscription to access the entire article may have had additional information in the full text that could have affected the assessment for accuracy. The majority of books found online were either not relevant to the key phrase about infant sleep or provided outdated information.
Several websites were on the topic of breastfeeding and bedsharing. There is a great deal of controversy among health professionals on this topic, as bedsharing and breastfeeding duration have been correlated,19
but bedsharing also increases the risk of SIDS, suffocation, asphyxia, entrapment, and other sudden unexpected infant deaths.20–26
For such controversial topics, it is not surprising to find a high percentage of inaccurate websites (e.g., promotion of bedsharing as a strategy to encourage breastfeeding), as accuracy was determined solely by consistency with AAP recommendations.10, 11
Websites with the highest rates of inaccurate information included retail product review websites, blogs, and individual websites. Retail product review websites with inaccurate information generally promoted products (such as infant sleep accessories) that are not recommended by the AAP. There was frequently an implication that the product was AAP-endorsed (e.g., promotes sleeping on the back, which is recommended by the AAP). As many of these products are specifically not recommended by the AAP and have no scientific data to support their claims, it is disturbing that these websites promote products that are generally unnecessary and may be dangerous to sleeping infants. Blogs and individual websites often included authors from a wide variety of backgrounds, including pediatricians and concerned parents. Thus both blogs and individual websites may present contrasting views. Included in the “individual” website category were 3 Facebook pages. It is yet unclear what impact these types of websites will have on parent behavior. However, half of US adults27
and 73% of the upcoming generation of parents (currently ages 12–17)2
currently use social network sites, so these websites may become more important sources of health information in the future. Forums were also included in the ‘Blog’ category, as there are no requirements or qualifications to become a contributor to a community conversation. Forums provide an avenue for networking in an inquisitive and supportive manner. However, these virtual conversations, by their nature, may be the source of inaccurate information28
, which may in turn result in potentially dangerous practices. Parents may be in search of support from others who have, for instance, placed their infant prone for sleep without negative consequences and who currently recommend that practice to others. Indeed, in the forums that we encountered in our searches, many parents explicitly discussed how they dismissed the AAP recommendations, particularly with regards to bedsharing, sleep position, and the use of home monitors.
Sponsored link websites such as eHow.com and About.com often have hired experts, including physicians, as contributors for specific topics. It was therefore surprising that the content of these websites was frequently inaccurate. It is possible that sponsoring entities (such as infant product manufacturers) disagree with specific AAP safe sleep recommendations and/or may be promoting products that are not recommended. Video messages (primarily Youtube videos) were also categorized as sponsored link websites. Fourteen percent of U.S. adults do not have basic literacy skills;29
in addition, many others do not have the ability to read and comprehend technical reports. Video can thus be a powerful internet tool for these parents and serve as an alternative, easily accessible, source of information. We found that, with the exception of infant sleep position, for which the videos consistently provided accurate information, videos frequently provided inaccurate or not relevant information with regards to infant sleep safety.
We were surprised that news websites only provided accurate information about infant sleep safety approximately half of the time. In general, national news coverage about infant sleep care almost always correctly described AAP guidelines, but sometimes highlighted the controversy over specific guidelines rather than the importance of the guidelines themselves. Local news coverage was generally limited to stories about tragic, traumatic, and often fatal incidents, without any mention of AAP guidelines or about how other parents could prevent similar mishaps. Parents frequently gauge the importance of an issue by how frequently they hear about it in the news.18
If parents therefore have not heard about SIDS or other causes of sudden unexpected infant death in the news recently, they assume that this is no longer a problem and that they no longer need to take steps to reduce the risk of such an occurrence.
We acknowledge that this study has limitations. There may be observer bias in determining accuracy or inaccuracy of websites. We took specific measures to minimize bias. We developed strict criteria for categorizing the websites and determining the accuracy of each website. In addition, we limited each search to the first 100 websites. Expanding the searches may have altered the results. However, we felt that it was unlikely that the typical parent conducting a search about infant sleep safety would search beyond 100 websites (8–10 pages).
In conclusion, we found that the internet frequently contains inaccurate information about infant sleep safety. It is important for health care providers to realize the extent to which parents may turn to the internet for information about infant sleep safety and then act upon the advice found, regardless of the reliability of the source. Providers should consider offering URLs of specific websites that they have identified as accurately reflecting AAP guidance and educating families on how to evaluate health-related websites for trustworthiness. Websites such as Healthfinder (healthfinder.gov
), Medline Plus (http://www.nlm.nih.gov/medlineplus
), and Health on the Net Foundation (www.hon.ch/HONcode
), may be helpful in providing such guidance. Finally, governments and other entities that host websites with infant sleep safety information should periodically review the content of the information for accuracy and currency.