3.1. User testing of the survivorship communication training module
Twelve early stage breast cancer survivors were recruited to evaluate evolving versions of the content topics, mock storyboards, and components of the module prototype. Survivors were recruited from the Fox Chase Cancer Center Breast Cancer Support Group, with ages ranging from 47 to 68. All women had completed their active breast cancer treatment; 11 were Caucasian and one was African American. Examples of participant feedback and resulting modifications to the module selected from 25 identified issues are shown in . Overall, 11 participants reported that they found the module content helpful and would suggest that other breast cancer survivors use it.
Findings and recommendations from user testing.
3.2. Usability testing of the survivorship communication training module
Because the goal of usability testing focuses on navigation and functionality rather than on module concept or content, we included both breast cancer survivors (n = 5) and other women (n = 5) of the same age range as participants. Age of participants ranged from 45 to 58 years, on average they had completed high school, and nine of ten women were Caucasian. The usability video clips revealed a total of 20 system errors and navigational confusions that needed improvement ( lists five examples). shows an early prototype mockup of the module’s front page; is the final version which includes improvements in the module’s front page presentation, graphical cues, component layout, and color and text style.
Findings and recommendations from usability testing.
An early prototype mockup of the survivorship communication training module front page.
A final screenshot of the survivorship communication training module front page.
3.3. Preliminary usage of the survivorship communication training module from the randomized trial
We used the web tracking data of the first 256 participants in the randomized clinical trial who accessed the parent program via the Internet from January 2009 to February 2010. shows that the majority of participants were Caucasian breast cancer survivors with a median age of 53, a college education or higher, household income of $80,000 or greater, and access to health care providers and insurance.
Study participant demographic characteristics.
Fifty-nine percent (n = 152) accessed the survivorship communication training module during the 13-month period. Of these, the majority (53.6%) used the module for up to 5 min during their first module access. The median time spent during the first module session access was 4 min and the average time spent was 7 min. Approximately 26% of users spent 10 min or longer accessing information from the module during their first session. The most frequently accessed component across users was the survivorship care plan (71.7%), followed by the adjuvant treatment summary (67.8%), interactive question prompt list (64.5%), health care team roles (61.2%), text-based educational materials (48.7%), and role modeling video (25.7%).