We thank all the COHORT research participants, their families, and caregivers for their participation and support in the study.
Drs. Christopher Beck and David Oakes from the University of Rochester and John Warner from CHDI Foundation, Inc. conducted the statistical analyses.
Huntington Study Group COHORT Investigators
Authors: The following members of the Huntington Study Group are investigators in COHORT (Cooperative Huntington Observational Research Study) and authors of this report. Dr. E. Ray Dorsey had full access to all of the data in the study and takes responsibility for the integrity of the data and the accuracy of the data analysis.
Steering Committee: Ira Shoulson, (principal investigator), University of Rochester, Rochester, NY; James Gusella, (co–principal investigator), Massachusetts General Hospital; Tatiana Foroud (co-principal investigator), Indiana University School of Medicine; Daniel P. Van Kammen, CHDI Foundation Inc.
Publications & Data Use Committee: Tatiana Foroud (Chair), Indiana University School of Medicine; E. Ray Dorsey (Co-Chair), Johns Hopkins University; John Warner, Joseph Giuliano, CHDI Foundation Inc; Louise Vetter, Huntington Disease Society of America (HDSA); Oksana Suchowersky, University of Calgary; Christopher Beck, David Oakes, University of Rochester.
Participating Investigators and Coordinators: Frederick Marshall, University of Rochester; Karen Marder, Steven Frucht, Carol Moskowitz, Ronda Clouse, Paula Wasserman, Columbia University Medical Center; Kathleen Shannon, Jeana Jaglin, Rush University Medical Center; Josepth Jankovic, Alicia Palao, Baylor College of Medicine; Madaline Harrison, University of Virginia; Carlos Singer, Monica Quesada, University of Miami; Steven Hersch, Diana Rosas, Kaloyan Tanev, Keith Malarick, Massachusetts General Hospital; Amy Colcher, University of Pennsylvania; Juan Sanchez-Ramos, University of South Florida; Sandra Kostyk, Ohio State University; Jane Paulsen, University of Iowa; Joel Perlmutter, Samer Tabbal, Washington University; Christopher Ross, E. Ray Dorsey, Frederick Nucifora, Johns Hopkins University; Richard Dubinsky, Hilary Dubinsky University of Kansas Medical Center; Oksana Suchowersky, Mary Lou Klimek, University of Calgary; Randi Jones, Claudia Testa, Stewart Factor, Emory University School of Medicine; Dana Jennings, Institute for Neurological Disorders; John Morgan Medical College of Georgia; Donald Higgins, Eric Molho, Albany Medical College; John Adams, The Centre for Addiction and Mental Health, Toronto, Canada; Samuel Frank, Marie Saint-Hilaire, Melissa Diggin, Boston University; Sarah Furtado, University of Alberta; Francis Walker, Christines O'Neill, Vicki Hunt, Wake Forest University School of Medicine; Kimberly Quaid, Indiana University School of Medicine; Mark LeDoux, University of Tennessee Health Science Center; Lynn Raymond, Blair Leavitt, Joji Decolongon, University of British Columbia, Canada; Susan Perlman, University of California, Los Angeles; Jody Corey-Bloom, Guerry Peavy, Jodi Goldstein, University of California San Diego; Rajeev Kumar, Colorado Neurological Institute; Elizabeth McCusker, Jane Griffith, Clement Loy, Westmead Hospital, NSW, Australia; Vicki Wheelock, Terry Tempkin, Amanda Martin, University of California Davis; Martha Nance, Hennepin County Medical Center; Un Kang, University of Chicago; William Mallonee, Greg Suter, Hereditary Neurological Disease Center, Kansas; Fred Revilla, Maureen Gartner, University of Cincinnati/Cincinnati Children's Hospital; Carolyn Drazinic, Mary Jane Fitzpatrick, University of Connecticut; Michel Panisset, Hôtel-Dieu Hôpital-CHUM, Canada; Kevin Duff, University of Utah; Burton Scott, Duke University Medical Center; William Weiner, Bradley Robottom, University of Maryland School of Medicine; Edmond Chiu, Olga Yastrubetskaya, Andrew Churchyard, St Vincent's Aged Mental Health Service (SVAMHS) Melbourne, Australia; Timothy John Greenamyre, University of Pittsburgh; Pinky Agarwal, Booth Gardner Parkinson's Care Center, WA.
Biostatistics/Coordination Center: David Oakes, Christopher Beck, Suzanne Robertson, Dustina Holt, Ken Eaton, Patricia Lindsay, Lisa Deuel, University of Rochester.
DNA Genotyping Center: Marcy MacDonald, Center for Human Genetic Research, Massachusetts General Hospital.
In addition, we would like to acknowledge the following individuals for their contributions to the COHORT study: Irina Antonijevic, CHDI Foundation, Inc.; Charlyne Hickey, University of Rochester; Lisa Muratori, Elan Louis, Columbia University Medical Center; Nick Doucette, Ohio State University; Ergun Uc, Robert Rodnitzky, Anne Leserman, Stacie Vik, University of Iowa, Robert Davis, Susan Dietrich, University of Virginia; Vicki Segro, Diane Erickson, Colorado Neurological Institute; Vicki Hunt, Wake Forest University School of Medicine; Nancy Lucarelli, University of Pittsburgh; Janice Broyles, University of Kansas Medical Center; Jeanen DeLaRosa, University of Texas (Galveston); Elan Louis, Columbia University Medical Center; Peter Panegyres, Neurodegenerative Disorders Research, WA, AUS; Amy Schmidt, Stacey Barton, Washington University; Elaine Sperin, Claudia Testa, Emory University; University of California, Los Angeles; S. Elizabeth Zauber, Melissa Wesson, Indiana University; Robert McInnis, Massachusetts General Hospital; Claire Welsh, Johns Hopkins University; Melissa Wesson, Indiana University School of Medicine; Allison Coleman, University of British Columbia, Canada.