displays the sample characteristics overall and by mean worry scores. The mean age was 56.8 (SD=11.4) and 68.7 %, 14.3%, 8.1%, and 8.9% were white, AA, Latinas-high, and Latinas-low respectively. In bivariate analyses, there were significant differences in mean worry scores (all p values <0.001) for all sociodemographic variables except level of income.
Sample Characteristics Overall, and by Mean Worry About Recurrence
Women who were younger, Latina, employed, married, and less educated had higher levels of worry. More worry was also reported by women with higher cancer stage, fewer co-morbidities, and more frequent pain and fatigue during treatment (all ps <0.05). Women who had lumpectomy compared to mastectomy reported more worry, as did women who received radiation and/or chemotherapy (all ps <0.05).
For the total sample, item mean levels of worry were distributed as follows: 14% “not at all,” 32% “a little bit,” 25% “somewhat,” 16% “quite a bit,” and 14% “very much.” shows the percent of women reporting levels of worry by race/ethnicity. Almost 29% of AA women expressed low levels of worry (corresponding to “not at all)” compared to about 10%, 19%, and 20% for Latinas-low, Latinas-high, and whites, respectively. Alternatively, almost 46% of Latinas-low reported the highest category of worry (“very much)” compared to 25%, 13%, and 14% for Latinas-high, AA, and white women, respectively.
Percent of women reporting levels of worry by race/ethnicity
displays unadjusted mean worry scores for the three health care experience factors. Greater ease in understanding information (3.14, 3.01, 2.68 for low, medium and high, p< 0.001), better symptom management (3.31, 2.85, 2.76 for low, medium, and high, p=0.001) and more coordinated care (3.39, 2.91, 2.73, for low, medium, and high, p<0.001) were all significantly associated with lower levels of worry.
Unadjusted mean wony scores for three health care experience factors
In the multivariable findings, () where Model 1 adjusted for sociodemographic and clinical/treatment factors, worry scores were significantly associated with race/ethnicity, age, employment status, frequency of pain and fatigue, and receipt of radiation therapy (all ps < 0.05). More worry was reported by Latinas (low and high) than whites, and women who were younger, employed, had more comorbidities, had more pain and fatigue, and who received radiation. In Model 2 that further adjusted for the three factors from the health care experience, associations were only slightly reduced for sociodemographics, clinical and treatment factors, with the exception of the number of comorbidities where the associations were reduced and no longer significant (p=0.091). In this model, Latinas-low reported more worry than other groups, worry scores 3.80 vs. 3.17, 2.59, 2.90 for Latinas-high, AAs, and whites (p<0.001). While worry continued to be significantly higher for Latinas-high than whites, the magnitude of the differences were small, suggesting differences may be a result of a large sample. African American women reported significantly less worry than whites. Model 2 also demonstrates associations between worry scores and patients' appraisal of their care experiences. Specifically, less worry was associated with greater ease of understanding information (p=.047), better management of symptoms (p= 0.044), and more coordinated care (p=0.012). We did not find any significant interactions between sociodemographics and health care experience factors, suggesting that sociodemographic factors and worry scores were not modified by health care experience factors.
Adjusted Mean Difference in Worry About Recurrence by Sociodemographic, Clinical, and Treatment Factors, and Factors in the Health Care Experience