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The Centre for Rare Disorders is an interdisciplinary, nationwide competence centre which offers information, counselling and seminars on a selected range of rare disorders.
The purpose of the e-learning programme in question is to improve quality of life for patients with Huntington’s disease by increasing the carer’s knowledge. E-learning and interactive sharing of information can be an effective and secure way of providing professionals with new knowledge. E-learning also functions as a tool for network-building.
The e-learning programme is organised as a module based compilation of knowledge and competence gathered by the Centre for Rare Disorders and its collaborators over the last 15 years. In addition to the modules, the users have shared information in on-line discussions. Their level of knowledge was evaluated through several tests.
The participants received a password and username for logging on to the programme.