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Research on sensitive issues such as abuse and violence in vulnerable populations poses several ethical dilemmas. An important aspect is the impact of such enquiries on one’s mental health. This paper discusses specific ethical issues related to mental health based on violence research conducted and reviewed by the authors. Research on violence among women includes the possibility that some revelations are occurring for the first time and are likely to be emotionally charged. Further, the very act of disclosure may involve emotional risks for the respondent. Psychological distress may be present prior to, during, or following the study. Hence assessing mental health parameters becomes essential and integral to research of this nature.
Several issues in methodology are also important in mitigating the level of distress and include the following. Research on sensitive issues should either use measures developed in the same culture or those with adequate adaptation. The order of questions, language and method of termination of the interview may often make a difference to psychological impact. While focus group discussions and semi structured interview schedules are most suited, questionnaires with a less structured and rigid approach may also be used. In addition, preludes may be introduced to facilitate transition between different sections of an interview schedule and to provide a rationale for further enquiry. Obtaining informed consent in violence research should be a process rather than a one-time formality. Reports of adverse events are likely in violence research, and hence such studies must include mental health intervention, ongoing follow up, documentation and appropriate referral services. Finally, since the researcher and the subject of the research are both affected in a study of this nature, adequate sensitization, ongoing training and supervision of research staff are essential. Based on findings from ongoing research on violence and from a review of other studies done in India, this paper will focus on best practices in addressing mental health issues in domestic violence research.
Research in domestic violence (DV) is gaining more attention in recent years. Having evolved into a growing public health problem, DV also poses a considerable threat to and violation of human rights. WHO (1) defines DV as, “a range of sexually, psychologically and physically coercive acts used against adult and adolescent women by a current or former male intimate partner.” Women are vulnerable to many forms of violence, DV being the most common form (2). In the context of DV, the victim is almost always the woman or the wife and the perpetrator is the man, very often the husband or intimate partner (3, 4). The terms DV and intimate partner violence (IPV) are used interchangeably in literature and in this paper.
Although DV is a global phenomenon and cuts through socio-cultural barriers, the bulk of the literature comes from developed countries. The reasons for the paucity of research in developing countries are: concealing or under reporting of facts, a reluctance to disclose facts, fear of jeopardizing family respect, and poor orientation to research. Research on sensitive issues involving vulnerable subjects poses several methodological and ethical challenges to the researcher. Participants in a study of DV are doubly vulnerable:being female in a patriarchal society and being a victim of violence. Therefore, any attempt to study sensitive issues such as abuse/violence among vulnerable subjects such as women ought to be ethically informed.
Violence in any form impacts one’s mental health. Women exposed to both physical/psychological violence and psychological violence alone had a higher incidence and severity of depressive and anxiety symptoms, post traumatic stress disorder (PTSD), and thoughts of suicide, than women in the control group (5). Participants reporting DV had higher scores on depression, anxiety, somatisation, low self esteem and were likely to have attempted suicide. Spouses of these participants were found to abuse drugs and alcohol (6). A strong correlation exists between the spouse’s problem drinking and violence against his partner (7, 8). Severe forms of DV were significantly associated with mental health symptoms and health behaviours, including anxiety, depression, difficulty concentrating, memory loss, suicide attempts, weight gain, past history of smoking and illicit drug use (9). While depression, anxiety, PTSD and dissociation are common psychiatric syndromes associated with violence, in some cases, psychological or emotional disturbances may not amount to a syndrome; instead, sub-threshold symptoms may be apparent. Further, mental health disturbances can either be the cause or the effect of violence (10).
Roche (11) found that one-third of all female patients reported at least one form of IPV in their lifetimes. IPV was associated with a low self-rating of physical and mental health, frequent visits to the emergency room and problems with alcohol, drugs, and mental health. The findings illustrate the need for IPV screening protocols that address mental health and substance abuse and also emphasize the importance of screening all women for IPV.
Abused women in various settings had increased health problems such as injury, chronic pain, gastrointestinal and gynecological signs including sexually transmitted diseases, depression and post traumatic stress disorder (12). A recent study from India reported mental health correlates of domestic spousal violence based on a household survey method in both urban and rural areas of seven cities (13). About 40% of the sample reported experiencing violence in their marriage. They in turn were at increased risk for poor mental health.
Women, especially Hispanic women, who experienced partner violence were at increased risk of not receiving mental health care. These findings, therefore, highlight the need for culturally sensitive and specific outreach services that are aware of the effects of partner violence on women’s mental health, and are informedabout how to access these services (14). In the West it is recommended that health service personnel routinely question women about abuse by their intimate partner. This is suggested because of the serious health consequences of DV and the low identification rate of abuse by health services (15). Psychological distress may be present prior to, during, or following the study. Therefore, assessing mental health parameters becomes essential and integral to research of this nature. Since violence has a strong psychological sequel, it becomes ethically imperative to integrate mental health assessments in a study of DV.
Research in the area of abuse involves two components that are unique. First, it includes a possibility that some revelations are occurring for the first time and hence are likely to be emotionally charged. Second, research of this nature, by its very act of disclosure, may involve risk to the respondent. Therefore, the method of inquiry employed in research of this nature ought to be sensitive (16).
Studies on DV both in the West and in India have used household surveys, structured interviews and self report measures. Since psychological distress may be present prior to, during or following the research, several issues in methodology are also important in mitigating the level of distress. The methodological and ethical issues addressed below are interrelated and therefore there may be some overlap. This is primarily because in studying sensitive issues, ethical concerns very often inform or influence the choice of the method. Instances of ethically informed methodology include the following.
The Council for International Organization of Medical Sciences (CIOMS, 1991) outlined basic ethical principles for human participants enrolled in epidemiological research. These are: respect for individuals, non-malfeasance (minimizing harm), beneficence (maximizing benefits) and justice (20).
WHO (21) subsequently published specific ethical guidelines for DV research based on the experiences of the International Research Network on Violence Against Women (IRNVAW). These are:
Obtaining informed consent in violence research should be a process rather than a one-time formality. This is because the respondent is often unclear about the questions till they are actually asked. One of the recommendations is to take informed consent at every level of sensitive information gathering, that is, while moving from questions related to emotional abuse to the section on physical abuse and so on. The informed consent form should clearly state the risks and benefits involved in volunteering for a study of this nature. Refusal rates also need to be documented, not just for methodological reasons and interpretation, but also to indicate reticence on the part of the respondent or guardian to participate in such research (16).
The physical safety of respondents and interviewer from potential retaliatory violence by the abuser is of prime importance. At the same time women who are both the subject and beneficiary of research need to give full informed consent and ensure that the interview process is affirming and does not cause distress (22). The Helsinki Declaration of the Association of World Physicians says, “Health and well-being of patients must have priority over any scientific result or benefit”, thus clearly emphasizing ethical responsibilities of researchers towards the participants of their study.
Domestic violence affects different domains of a woman’s life, and its impact on mental health is the most significant. Therefore, from an ethical standpoint, mental health assessments ought to be integral to research of this nature.