|Home | About | Journals | Submit | Contact Us | Français|
As an experienced general practitioner (GP), I have a fair idea of what any paper about a chronic illness will say. There are certain themes that recur, and I thought it would be useful to bring them together here. For any chronic condition, any paper or report will say some or all of the following:
This disease is very common (incidence or prevalence). It is associated with extra morbidity and/or mortality. It is underdiagnosed. It is not as well recognised as other equally common chronic diseases. This is a shocking indictment of….
Recommendations here will include some combination of consciousness raising and educational meetings. Patient advocacy groups may have a role. Screening may be suggested. Pharmaceutical companies love these consciousness‐raising strategies as they can market their drug under the pretext of performing an educational service. Moynihan et al1 review this area well:
The severity of the disease is often underestimated. Patients will feel stigma/shame/embarrassment about mentioning the symptoms of this disease.
Recommendations here will include use of a newly validated disease‐specific questionnaire, employment of specialised nurses, patient empowerment and advocacy, and better consultation skills for GPs. The problem with empowerment was described recently.2
The illness is often under‐treated.
This can be either primary in that the treatment was never initiated, or is not available, or secondary in that patients do not take the treatment. The remedies here may include better communication to achieve concordance, employing specialised nurses or greater pharmacy input.
The danger here is of swinging to overtreatment, as happened with the prescription of antidepressants after the “Defeat Depression” campaign. A few years later GPs were severely criticised for overprescribing for depression.3
Further research is needed.
Well, of course, it is, especially if you have a department to sustain and a promotion to get. What it usually translates as is “Please treat this paper as an application for our next grant”. What is lacking from most research on chronic illness is the deep awareness of the day‐by‐day lived reality of most healthcare workers. This contrasts with the great efforts that go into finding out the patient's experiences. The knowing–doing gap that research often highlights is real.4 Sadly, research seems unlikely to bridge this gap until it understands the constraints of time, space, motivation and money that health workers work within.
Somehow the notion “more resources are needed” does not achieve this.
Competing interests: None declared.