The mean age of our patients was 56, with a range from 40 to 78 years as can be seen in table . The educational level was relatively high. Working experience ranged from 8–19 years with a mean of 11.3 years among GPs and from 13–35 years (mean: 21.7) among practice nurses. Some items yielded very limited responses among practice nurses, therefore their statements were only mentioned if they provided an important contribution to a specific aspect. Tables , , display the categorical system with subcategories. The numbers in brackets display how many participants responded to the respective category.
Baseline characteristics of the study sample
Main categories regarding diagnostic aspects
Main categories regarding treatment aspects
Suggestions concerning improvement of care
Diagnotic aspects – proceedings
The interviewed GPs stated that in most cases diagnosing OA poses no major problem to them. The diagnosis is frequently based on an extensive anamnesis and an accurate examination. The interviewed GPs stated that if they are unsure whether the pain is caused by the joint or periarticular structures, an x-ray is performed to confirm OA. During the course of OA, the situation is more difficult: it sometimes represents a challenge for GPs to distinguish between complaints resulting from the joint affection and complaints which are mainly related to depressed mood. Satisfaction among patients regarding the diagnostic procedure was high: most patients in our study sample stated that the GP took enough time in diagnosing and that the examination was extensive and accurate.
When asked about how and to what extent GPs inform patients about the disease, some GPs stated that they try to assess the patients' need for information and their capability to understand, but also what they assume the patient can handle. Overall, patients were considered to be well informed due to their utilisation of countless other sources of information such as print media and TV.
This assumption was confirmed by many patient statements. Regarding the cause and the pathomorphology, patients felt well informed. Most of them were aware of the degenerative nature of the disease. There was no apparent lack or request for more information on this topic. But in terms of the prognosis, patients were very insecure. Pain and becoming disabled were the main fears of patients and most of them stated that they were insecure to what extent pain could increase and if they would be able to walk at some point in time. Many patients argued that physicians were mainly focused on explaining the pathology of the disease and the treatment options such as new surgical methods, but less focused on their main fears. Especially older patients seemed to have problems mentioning these concerns. In conclusion, there was no quantitative lack of information, but a qualitative one, as the following two statements reflect:
"The majority of patients nowadays open the envelope (of the specialist) themselves. They know exactly what is written down there. There is communication on the same level between doctor and patient. " (GP 10, male, 37 years)
"I know that OA is a one-way-street. That's not the problem. Life is a one-way-street too. But in OA I don't really know what's at the end." (Patient 17, male, 71 years)
Diagnotic aspects – problems
Asked about problems in the diagnostic process, most of the interviewed GPs were aware that like many other diseases of the musculoskeletal apparatus, OA only shows little correlation between what is pathomorphologically visible – e.g. on a radiographic image – and subjective complaints. Therefore, many GPs stated that they found it difficult to assess to what extent complaints originate from arthritis and what part of the complaints are due to concomitant depressive symptoms. This was particularly the case when there was unsufficient radiographic evidence and the physical examination gave no sign for an acute inflammation of the joint. Depression was also recognized as an important barrier to motivate patients to physical exercise. Concrete instruments, such as well known questionnaires for instance the HAMDS [18
] or the PHQ-9 [19
] etc. were not used to reveal depression. One GP stated:
"And there is always a depressive component. The relation between depression and arthritis pain and physical sensation is an important one. And exactly those people with depression cannot change anything about it, because they really suffer from depression and are not capable of changing their lives or doing something about their lives; they fall deeper and deeper into this vicious circle of disease and pain, and nobody can help them." (GP 5, male, 47 years)
According to GPs' statements, and confirmed by most patients of our sample, nearly every patient was sooner or later referred to an orthopaedic surgeon in order to confirm the diagnosis by taking an x-ray.
"He was more interested in taking pictures of my knee than in examining it". (Patient 19, female, 68 years about an orthopaedic specialist)
Patients regarded specialists as an additional source of information, but most of them mentioned that the GP took definitely more time for the anamnesis and was often more accurate than the specialist. Many patients stated orthopaedics would be mainly interested in the use of machines then in talking to them. GPs also had an ambivalent attitude towards these referrals. On the one hand they did not recognize superiority in knowledge and treatment options of a conservative treatment by an orthopaedic surgeon. On the other hand they used the orthopaedic surgeon from time to time to escape from the psychological burden induced by the patient and the absence of treatment options. In addition they felt a lot of pressure by patients to refer them to the specialist, especially in case of younger and well educated patients. But some stated that they sometimes felt abused by patients as well as by specialists, because the patients pushed them to be referred and the specialist did not take the time to explain what they had examined or the x-rays he had taken. Therefore GPs often ignored the patients' repeated requests for referrals to an orthopaedic specialist.
Interestingly, lack of time could not be revealed: most GPs stated to take as much time as possible and patients did not regard time limitation as a main problem or at least showed understanding for the limitation in the face of overcrowded waiting rooms.
Treatment aspects – pharmacological treatment
Regarding treatment aspects, pharmacological treatment was the topic on which the most statements were recognized, indicating the importance of this topic for all groups. Facing decreasing financial resources and increasing restrictions by most health insurances, many GPs stated that treatments like massages, physiotherapy and manual therapy were prescribed less frequently. Some GPs complained that in consequence, OA treatment has mainly been reduced to prescribing pain medication.
Asked about adherence to guidelines, which recommend Paracetamol as first choice of pharmacological treatment [20
], GPs stated that Paracetamol was not accepted as a real pain reliever because it is known to most patients as medication for "headache" and available without prescription. GPs also argued that most patients have already taken this drug on their own by the time they visit their physician.
Consequently, Paracetamol was prescribed less by the interviewed GPs and for all of them NSAIDs represented the main pillar in their pharmacological therapy of OA. But after the withdrawal of most COX-2-inhibitors, patients as well as doctors felt very uncertain what to consider as an appropriate pharmacological treatment.
Interestingly enough, patients and GPs have a similar ambivalent attitude towards analgesics. Patients appreciated the alleviation of pain, but at the same time they instinctively rejected these drugs without an apparent rational explanation. For instance, Diclofenac's stomach-irritating potential is such a well known fact that positive aspects of the drug are being ignored. No patient stated that he would take pain reliever in advance; they normally wait until they can not take the pain any longer. GPs felt that due to the package inserts patients mainly focused on side effects and therefore these leaflets were regarded as a barrier for optimal treatment compliance. GPs' main aim was to ensure that the patient actually took the prescribed drugs. Therefore they had mostly developed individual strategies that consisted of a balancing act of explanations for anticipated objections regarding treatment, legal requirements and belittlement.
Asked about the meaning of package inserts, most of the patients stated that information on side effects was not that important to them, because they were aware that many of the side effects mentioned on the package insert never occurred. On the other hand they generally read the package inserts. Most patients of our sample stated that they mostly trusted the information given by their GP. But it seemed that the package inserts alerted them for possible side effects. In conclusion patients as well as doctors are more focussed on side effects then on positive effects such as the anti-inflammatory potential of NSAIDs.
The following statement displays the strategy of one GP in dealing with side effects:
"Well, my personal opinion is, if you give the patients two or three side effects, they are happy, otherwise they have all of them since they are printed on the package insert. For that reason, I limit myself to two or three that I mention. Sometimes, when you mention it and say,"oh you could get that, but not really, only a few get that", I always attach a negative example, "but I think you are quite fit and healthy, so that you will not get it", then they don't get it. (GP3, male, 51 years)
Regarding opiates, similar barriers could be revealed from the doctors' as well as from the patients' perspectives: GPs stated that many patients would reject these "heavy drugs" (GP 6) and it seemed that even GPs regarded use of these drugs as overtreatment in OA. Furthermore, most physicians stated not to prescribe them as they are poorly tolerated and cause nausea. Opiates were often recognized by patients as medication for people in very poor condition as e.g. cancer patients and therefore rejected. None of the patients received a structured pain treatment plan or systematic advice to cope with pain. The following statement of a patient (female, 76) reflects a quite typical statement:
"But I am careful; if I can take the pain then I won't take a pill because they are not really good for you. Only if there is no other way, then I will take one and that has to be enough....I really only take a pill when I am in terrible pain, otherwise I am against drugs." (Patient 4, female, 71 years),
Treament aspects – advice giving and counselling
This topic received the second most statements from GPs and patients. Nearly all interviewed GPs emphasised that they repeatedly addressed behaviour interventions that can slow down the progress of OA, including weight loss and the strengthening of musculature. However, most of them admitted that they did not focus on increasing patients' motivation for behavioural change, but just gave general recommendations. The success rate in motivating patients was considered too low by the GPs, and the majority appeared distinctly resignated regarding their impact on patients' life style. Many GPs also mentioned that there was a vicious circle: due to pain when exercising, people move less and eat more due to accompanying frustration and sometimes depression. Being asked about the reasons why it is so hard to communicate these secondary preventive measures to patients, most GPs answered as GP 17 (male, 54 years):
"Osteoarthritis is ultimately only a symptom of a huge lifestyle problem a complete change in lifestyle is required.... and this is impossible for osteoarthritis patients who are mostly elderly people...nobody is willing to change his/her lifestyle due to osteoarthritis, the disease has to be a lot worse than this. People have basically learned to live with it. "
The patients in our sample confirmed GPs' statements regarding life style interventions. The majority indicated that their GP had tried to motivate them repeatedly and had explained the general effects of lack of exercise and overweight. The following statement displays this quite impressively:
"He really talked to me again and again, once he even asked if I wanted to eat myself into a wheelchair. And if I don't do it then it is my fault. The spirit is willing, but the flesh is weak. " (Patient 9, female, 68 years)
According to patients' statements, concrete types of exercise or other possibilities were not mentioned, directions were mostly quite vague. Asked about reasons for failure regarding their own physical activity, the patients mentioned pain, lack of knowledge regarding respective offers, lack of mobility and a lack of motivation. Indeed, most of the interviewed GPs stated that they did not inform patients about self-help groups or about offers on community level for instance. Reasons for this were a lack of information and frustration about the impact of this information: The GPs who had experience in giving this information complained that a lot of patients always find excuses not to participate in these services, such as the distance from their homes to the location etc. Contrary to these statements, patients welcomed basic information on self-help groups, but they were often unsure about possible benefits and also expressed their reservations, in particular regarding availability or location in the rural environment. Receiving just a short, vague hint without a clear advice or motivation was regarded as insufficient.
Suggestions concerning improvement of care
The interviewed GPs were convinced that a gate keeper role for GPs as in many other health care systems could reduce patients' pressure to refer to orthopaedics and decrease performed x-rays. Some GPs mentioned that better communication with specialists could increase efficacy of treatment, but no specific suggestions how to achieve this were made. Many GPs stated that the payment system has to be changed in order to upgrade conservative treatments and conversation with the patient. Due to the insecurity regarding NSAIDS, some GPs also desired evidence based pharmacological recommendations. Interestingly, patients could define their needs of care but ideas for improvement were quite vague such as better communication etc.
For most GPs an involvement of practice nurses -which currently is only marginally the case in Germany- is imaginable in the area of life style counselling and advice giving. Involvement in the diagnostic process was refused. Main barriers mentioned were lack of professional knowledge and lack of time due to administrative overload. Moreover, all GPs stated that interventions performed by practice nurses have to be reinsured sufficiently. Interestingly, practice nurses' opinions were quite similar to GPs' statements: They mentioned lack of knowledge due to professional education which is mainly focused on administrative issues. Especially younger practice nurses desired more involvement. They regarded this as an upgrade of their profession. Some of the nurses declared that they would like to offer links to self-help groups or sport groups if this information would be available in the practice.
To receive information and advices from practices nurses – by printed information or lectures – was acceptable for most patients. But some of them indicated – as some GPs did – that they fear a worsening of the trustful doctor-patient-relationship if the nurse is involved in too many proceedings. However, missing information about offers e.g. in the community, caused statements as the following one:
"There is a "Nordic walking group" in town...I know that some of our patients participate, but I really don't know to whom I should send the patients to." (Practice nurse 7, 29 years)