Search tips
Search criteria 


Logo of jrsocmedLink to Publisher's site
J R Soc Med. 1991 March; 84(3): 131–132.
PMCID: PMC1293129

Inflammatory bowel disease: patients' expectations in the 1990s.


A group of 70 patients with inflammatory bowel disease were asked to complete a questionnaire about their disease counselling preferences, 59 replied. Seventy-five per cent wanted further advice about their disease. Of these, 60% wished to receive the advice by discussion with a trained advisor. Seventy-six per cent wanted this person to be a hospital specialist, but 50% would accept advice from a specialty trained nurse. Eighty-six per cent would like this in conjunction with 'same day' telephone advice from a hospital specialist and 85% of patients wish to be taught how to adjust their own therapy. There is an increasingly important role for nurse counsellors in the management of these diseases.

Full text

Full text is available as a scanned copy of the original print version. Get a printable copy (PDF file) of the complete article (340K), or click on a page image below to browse page by page. Links to PubMed are also available for Selected References.

Selected References

These references are in PubMed. This may not be the complete list of references from this article.
  • Mazzuca SA, Moorman NH, Wheeler ML, Norton JA, Fineberg NS, Vinicor F, Cohen SJ, Clark CM., Jr The diabetes education study: a controlled trial of the effects of diabetes patient education. Diabetes Care. 1986 Jan-Feb;9(1):1–10. [PubMed]
  • Rees JE, Mayberry JF, Calcraft B. What the patient wants to know about Crohn's disease. J Clin Gastroenterol. 1983 Jun;5(3):221–222. [PubMed]
  • Schölmerich J, Sedlak P, Hoppe-Seyler P, Gerok W. The information needs and fears of patients with inflammatory bowel disease. Hepatogastroenterology. 1987 Aug;34(4):182–185. [PubMed]
  • Mayberry JF, Morris JS, Calcraft B, Rhodes J. Information assessment by patients of a booklet on Crohn's disease. Public Health. 1985 Jul;99(4):239–242. [PubMed]
  • Wyke RJ, Edwards FC, Allan RN. Employment problems and prospects for patients with inflammatory bowel disease. Gut. 1988 Sep;29(9):1229–1235. [PMC free article] [PubMed]
  • Smart H, Mayberry J, Calcraft B, Morris JS, Rhodes J. Effect of information booklet on patients' anxiety levels and consultation rates in Crohn's disease. Public Health. 1986 May;100(3):184–186. [PubMed]
  • Karbach U, Degen I, Ewe K. Ausmass der Medikamenten-Compliance bei M. Crohn-Patienten--Untersuchungen in der Spezialambulanz einer Universitätsklinik. Z Gastroenterol. 1984 Oct;22(10):573–579. [PubMed]
  • Jenkinson D, Davison J, Jones S, Hawtin P. Comparison of effects of a self management booklet and audiocassette for patients with asthma. BMJ. 1988 Jul 23;297(6643):267–270. [PMC free article] [PubMed]
  • Bakker K. Video education on foot-care. Diabet Med. 1987 Jul-Aug;4(4):334–334. [PubMed]
  • Kelly MP. The subjective experience of chronic disease: some implications for the management of ulcerative colitis. J Chronic Dis. 1986;39(8):653–666. [PubMed]
  • Neufeldt J. Helping the I.B.D. patient cope with the unpredictable. Nursing. 1987 Aug;17(8):47–49. [PubMed]

Articles from Journal of the Royal Society of Medicine are provided here courtesy of Royal Society of Medicine Press