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J R Soc Med. 2001 September; 94(9): 428.
PMCID: PMC1282177

Palliative care in the age of HIV/AIDS: recommendations for action

The meeting recommends the following areas of action, in education, access, research and financing, to improve palliative care in the USA and the UK:

  1. Survey medical, nursing and other relevant schools, to identify education programmes and exit examinations that include palliative care; single out best and poorest practice and set standards
  2. Develop and support multiprofessional education at a range of levels, and encourage its recognition in accreditation programmes
  3. Develop and support centres for evaluation of teaching methods in palliative care, particularly those methods that teach better care for those who are socially disadvantaged
  4. Invest in research to better understand the needs and experience of (a) individuals with an uncertain prognosis or with a widely unpredictable trajectory of illness, such as people with HIV/AIDS, and (b) vulnerable populations; the aim would be to determine how these needs might be better and more universally met by hospice, palliative care and other services, and to set standards of care
  5. Invest in research to evaluate and contrast the quality of palliative care in the USA and the UK, including a comparison of models and costs and an assessment of barriers to care. This may involve analysis of existing datasets, but will also require primary research for development of both qualitative and quantitative methods
  6. In both countries, invest in a coordinated (‘single pipe’) funding system for palliative care. This strategy would be preceded by a review of current financial sources and flows and would be tested in feasibility studies
  7. Increase the philanthropic support for innovative gap-plugging services and for research on these, to improve access to care. The services should be based within and staffed by the relevant communities; if successful they should be adopted by mainstream care
  8. Use developments in improving access for disadvantaged groups to address the broader issues of improving access to healthcare of all kinds

Articles from Journal of the Royal Society of Medicine are provided here courtesy of Royal Society of Medicine Press